Saturday, November 29, 2014

Chronicles of Peace

  • Since mid-June Grace has been on Humira and feeling fine.
  • Weekend of October 24-26: the kids and I went to Kansas to visit family and see a CYT show.
  • Monday morning, October 27: Grace told me she'd been feeling sick and thought her inflammation was back.  We packed bags for a possible hospital stay.
  • Monday afternoon we made an appointment with her GI Dr. Goyal.  He scheduled a scope.
  • Wednesday, October 29: Grace had a colonoscopy/endoscopy/ileoscopy.  Inflammation was all over her colon, in her duodenum and later we'd find out from the biopsy that it was also in her small intestine.  The next step was to remove her colon, leaving her ostomy bag until we know the next step.
  • Wednesday, November 5: appointment with Dr. Alder, the surgeon who did her ileostomy.  He would be able to do her surgery on November 24 [after he has ACL surgery himself].
Meanwhile, Grace was in a full-out flare.  We kept her fever and pain down with around-the-clock Tylenol and her nausea at bay with around-the-clock Zofran.  Even with those meds, she didn't feel great.  She had no energy and still felt the need to poop even with the ostomy bag.   She got up several times in the night to go to the bathroom, with pain and that strange urgency that usually kept her there a while.  She didn't go anywhere.  We were just happy to not be at the hospital.  Daddy put up Christmas decorations to make us happy and so we would have them up when we got out of the hospital.  He even put up lights on the house for the first time in years!  People would ask if Grace is nervous.  I think more than anything she just wanted to get it over with….and feel well.
  • Monday, November 24 wearing my TEAM GRACE tee, we drive to the hospital at 5am listening to a playlist made just for this day:  Stronger by Mandisa, He Knows My Name by Francesca Battistelli, Safe by Phil Wickham, Whom Shall I Fear by Chris Tomlin and He Knows by Jeremy Camp
  • But "Need You Now" was the song stuck in my head for most of the day, like background music for this moment in our story, or maybe just how God spoke to me quietly all day long.
  • After 4 hours, all was well and everything happened just as perfectly as it could have.  She awoke in terrible pain, but we just kept telling her it would be over soon.  We had no idea how quickly that would be true.  After 2 full days in the hospital, she was taking selfies and aside from lingering pain at times, seemed to be much better.
  • Wednesday, November 26:  We went home at 2pm.  Thankful. 
  • Today:  She feels good.  She hasn't needed any pain meds at all.  She loves that she can sleep all night long.  She isn't ready to run a marathon, but she is so happy to be home!  AND EAT!  She can eat, praise the Lord!  Turkey and taters and almost anything she wants!
Thank you all for prayers and love sent from so far.  We are blessed.  The verse that Grace and I talked through on the way to the hospital is our new family verse for 2015.  Our word is PEACE, because there is no place to be, like in His perfect peace.

Monday, September 29, 2014

TEAM GRACE 2014

We are once again walking in the Crohn's and Colitis Foundation's Take Steps Walk and the next walk in Fort Worth is on Grace's 14th BIRTHDAY!  She had so much fun this summer at CCFA's Camp Oasis, for kids of all ages with Inflammatory Bowel Diseases, and she has decided to go every year and even become a leader at the camp someday!  We are so proud of her and thankful for CCFA! 

We'd like to invite you to be a part of Team Grace!  Even if you can't make the walk, this year we are selling official TEAM GRACE tee shirts, which Grace designed!  She added her favorite bible verse to the back, along with the age she was when she was first diagnosed with Crohn's.  We think she did a great job!

To ORDER TEAM GRACE T-SHIRTS
Comment/email SAL with order details - sizes and quantity
Adult Sizes S, M, L, XL & XXL - $20 
OR $25 if we have to SHIP to you - be sure we have an address!





Thanks again for supporting Grace and our family!  

Thursday, July 03, 2014

Kidless Week

Our 3 little darlings went to their grandparents' in Kansas for the week and I have gotten ALOT done!  Here are a few things I've learned about my way-in-the-future empty nest:

1) Food stays in the fridge longer!
2) Silence is golden. 
3) There are actually some great cooking shows and house renovating shows on TV during the day that I would rather watch than Disney Channel!
4) It's hard to get anything else done when you're watching these amazing shows!
5) The Pioneer Woman is my favorite and she has the best cookware!  If I had her awesome cookware and fancy appliances I might be able to cook like her! 
6) I miss my kids. 
7) I do enjoy the spontaneous dating life!  
8) Time without kids gives me time to pray for them and dream of the future God has for them and for us as a family. 
9) I have neglected taking care of myself in the past 2 tumultuous years. It's time I start putting my physical needs back in priority so I can live a long time watching my kids' bright future. 
10) God is so good. He has given us a wonderful journey and it's nice to stop and remember all that He has done in us and through us so we can be inspired to press on down the path of life. 

Tuesday, June 24, 2014

Martin Family Roadtrip Devotions: Going Home



Tuesday, June 10:  Home.  Doesn’t it sound good?  Are you missing Sammy yet?  He’s missing you!  How about your own bed and shower?  It’s great to be away, but it’s always nice to go home.  When we are born, God puts an empty hole in our souls, so that we will always want to go home.  Everyone in this world, whether they believe in God yet or not, have a longing in their souls knowing they need to be settled somehow.  The feeling of wanting to go home or needing to be whole, is an emptiness that something is missing.  Many people try to fill it with things of this world, like material goods that money can buy so they go into debt and sometimes end up on the street.  Some people try to fill that hole inside with drugs and alcohol and end up hurting themselves physically.  Your daddy and I have always prayed that you would know Jesus early and we know you know about Him from all the stories you’ve heard and times you’ve been to church, but we pray that you fill that deep longing in your soul with Jesus and only Jesus for the rest of your life.  And one day you will go home to our eternal home in heaven.  That’s the good news!   

And in Him, you too are being built together to become a dwelling in which God lives by his Spirit.  Ephesians 4:22

Having believed, you were marked in Him with a seal, the promised Holy Spirit, who is a deposit guaranteeing our inheritance… Ephesians 1:13-14


Lord, thank you for a great time away.  Give us a safe trip home.  Keep our eyes on you and fill the hole we have inside of us with your Holy Spirit.  Thank you for our true home. Amen.

Monday, June 23, 2014

Martin Family Roadtrip Devotions: The Osborn Family



Monday, June 9:  The Osborns have known Mom & Dad since college.  Daddy even knew Kevin in high school!  We used to double date and have fun together and dream of having families someday.  When Luke was a baby they came to see us and stayed for a weekend.  Staying with them is such a blessing for our family!  It’s important to choose good friends that you know will be like family for the rest of your life.  We pray that you hold onto friendships, so that you’ll be blessed like we are!  

A friend loves at all times.  Prov. 17:17 ~ I thank my God every time I remember you. Phil. 1:3

Thank you, Jesus, for lifelong friendships that bless us!  Help us to choose friends that know You, love You, worship You and encourage us to follow You all the days of our lives.  Help us remember to be grateful for our friends and their hospitality towards us.  Thanks for a wonderful vacation with friends and family!